Families and Carers

family members ISPS

Family members and carers involvement in ISPS

ISPS welcomes and encourages the involvement of family members and carers in the society and is looking to expand their participation. The International Conference of ISPS in New York (March 2015) attracted a greater number of family members than previous conferences and several presentations and workshops included family members. ISPS maintains an e-mail discussion group for ISPS members who are carers / have a family member who has experienced psychosis. The members of the group offer each other support, discuss and debate issues relevant to their experiences, and liaise with the ISPS Executive Committee. If you are interested in joining the email group please contact isps@isps.org 

Further information for families of persons with psychosis can be found on our Learning Tools pages.

Post ISPS NY 2015 Resource List from the FAMILY panel:

www.cmha.ca A sibling’s guide to psychosis

www.earlypsychosis.ca  Focus on early intervention

www.cmha.ca A sibling’s guide to psychosis

www.earlypsychosis.ca Focus on early intervention

www.nami.org National Alliance for Mental Illness

www.hearingvoicesusa.org and www.hearing-voices.org The International Hearing Voices Network website lists Hearing Voices groups around the world and houses some great information on understanding voices.

www.mindmapct.org Early intervention in New Haven Conn, USA

www.engagenz.co.nz Mental health resources by people with lived experience and a psychological perspective including an Online Resources Pack, a New Zealand-focused Community Resources Directory, a book of recovery stories and an online coping tool called The Coping Kete.

www.toiora.co.nz An arts centre in New Zealand for people who experience mental-health problems to engage in creative activities.  The website shares poetry and art by the members.

www.mentalhealthexcellence.org/projects/families-healing-together

www.madinamerica.com Mad in America

www.madinamerica.com/2015/02/need-know-starting-drug-mental-healthproblem/

http://recoveryfromschizophrenia.org/ Includes Ron Unger’s e-book Helping Reduce Medications

www.intervoiceonline.org Intervoice Website

www.facebook.com/groups/intervoice/10152527354676230/ Intervoice Facebook Page: shares a lot of really interesting posts about hearing voices and other extreme experiences.

www.tandfonline.com/loi/rpsy20#.VR3KsuH3Mwc  Psychosis: Psychological, Social and Integrative Approaches. The peer-reviewed journal of ISPS is an excellent source of information about psychosis and strategies that can help. A subscription is required (free with ISPS membership) to read full-text articles online and receive 4 printed journals a year.

http://beyondmeds.com Beyond Meds: A website about alternatives to medication

www.comingoff.com Coming Off: A UK website that shares information about coping with coming off psychiatric medications.         

www.umassmed.edu/psychiatry/globalinitiatives/opendialogue/ Open Dialogue initiative at the University of Massachusetts: shares information on the key components of this approach. 

www.reddit.com/r/schizophrenia/ Reddit is a website where people post discussion items and questions on particular subject threads known as Subreddits. There are active subreddits for Schizophrenia and Bipolar along with many other mental-health related topics mostly used by lay-people who are seeking support and information.

www.calm.auckland.ac.nz/                CALM: Computer Assisted Learning for the Mind. A website of downloadable digital recordings of mindfulness, relaxation, breathing and other exercises for coping with stress.

www.dbtselfhelp.com/                      DBT Self Help shares information about Dialectical Behaviour Therapy, from people who have participated in DBT. A good source of information about coping with, communicating and understanding intense emotional states.

 “Getting my own therapy”               a suggestion from other family members: someone neutral to talk to about what this all means for you

“Personal support networks”          another family member suggestion was to seek support from trusted family and friends rather than attempt to manage everything alone – help with meals and housework during crisis times or a break for a few hours of uninterrupted sleep can make a real difference.

“Seeking out recovery stories”        another family member suggestion – fuel for maintaining a hopeful stance.

“How to touch a hot stove”              The Hots Stove Project (thehotstoveproject,org) has a resource page. It also has an excellent film on mental health stigma called "Hot to Touch a Hot Stove" and a supplementary film called "CRAZY?" Additionally, it has clips of several interviews with professionals, with individuals having lived experience, and with some who are                                                                professionals with lived experience.

Books

Anatomy of an Epidemic, Robert Whittaker

Rethinking Madness, Paris Williams

The Happiness Trap, Russ Harris – Acceptance and Commitment Therapy strategies for coping with stress and distress

The Bitterest Pill, Joanna Moncrieff

A Straight Talking Introduction to the Causes of Mental Health Problems, John Read – An easy-to-read, non-pathologising, non-blaming, short book summarizing the research on what causes mental-health problems.

Models of Madness, Read, Mosher and Bentall

Coming off Psychiatric Drugs: Harm Reduction Guide, 2nd Edition, by Will Hall – e-book available here: www.theicarusproject.net/downloads/ComingOffPsychDrugsHarmReductGuide2Edonline.pdf  

http://familieshealingtogether.com/focus/recovering-our-hope/

 

Older news 

Recommended books and films for family members

'Henry's Demons' by Patrick and Henry Cockburn

http://www.guardian.co.uk/books/2011/feb/26/henrys-demons-patrick-henry-cockburn

'Anatomy of an Epidemic: Magic Bullets, Psychiatric Drugs, and the Astonishing Rise of Mental Illness in America' By Robert Whitaker

Http://www.Amazon.Com/Books/Dp/1455884197

'Regular And Decaff' By Andrew Gadke

http://www.regularanddecaf.com/

Films by David Mackler

http://wildtruth.net/

 

Useful websites for family members and carers of people with psychosis: This list has been compiled by members of the ISPS e-mail group for families and carers of people with psychosis.

The Soteria Network

http://www.soterianetwork.org.uk/index.php

Mental Health Care, information about psychosis for family members

http://www.mentalhealthcare.org.uk/support_for_carers

King's College London, family intervention for psychosis

http://www.kcl.ac.uk/iop/about/difference/Family-intervention-for-psychosis.aspx

NHS advice for carers

http://www.nhs.uk/CarersDirect/carers-learning-online/Pages/carers-online-learning.aspx

EUFAMI, European Federation of Associations of Families of People with Mental Illness

http://www.eufami.org

The Meriden Family Work Programme is a UK based training and organisational development programme, which has been promoting the development of family-sensitive, evidence-based mental health services since 1998, with a particular emphasis on the implementation of family work. It is an NHS programme with extensive experience of working with organisations to ensure families remain at the heart of quality mental health service delivery.

http://www.meridenfamilyprogramme.com/carers.php

Power2u is an empowerment center with Daniel Fischer, a psychiatrist with psychosis

www.power2u.org

 

Websites - suggested reading

http://www.goodreads.com/book/show/1085313.The_Complete_Family_Guide_to_Schizophrenia

http://livingwithacreativemind.com

http://www.schizophreniacommission.org.uk 

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ISPS Journal

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The ISPS Journal Psychosis accepts personal and institutional subscriptions. All Individual Members of ISPS and members of regional ISPS groups receive quarterly issues of the journal as a membership benefit.

The ISPS Journal has recently been accepted by Web of Science