The corona crisis has brought significant changes to our interactions with each other. While the crisis may be even more challenging for people living with psychosis, we have also heard stories of resilience - that some people with psychosis susceptibility are doing well or even better than others in this period.
Why are we so interested in your experiences during the pandemic?
One of the objectives of ISPS is to investigate the relationship between psychosis and the environment. Now that there are profound changes in the relationship between people, this is a unique opportunity to learn from experience, including learning about the strengths of psychosis susceptible people.
We want to hear from people with psychosis susceptibility as well as their family members and practitioners.
Webinar 2
Covid and Psychosis : living in the long run (November 2020)
Watch the webinar recording here
Following the first successful ISPS International webinar on COVID-19 and Psychosis in June, the ISPS EC prepared a second webinar on the theme COVID-19 and Psychosis: Living in the long run.
There was once again a Trialogue between a person with lived experience of psychosis, a family member and a professional, followed by a summary of the stories submitted and discussion with participants.
Panelists: Paul Ekwuruke, Irene van der Giessen and Pat Wright
Discussion moderators: Debra Lampshire and Rai Waddingham
We are now in the middle of a longer term life with the COVID pandemic and all the social and individual reactions that are emerging. During our first webinar in June 2020, we tried to focus on the way persons with susceptibility to psychosis, family members and health carers dealt with this new situation and see the negative and the positive aspects. We were also very interested in stories relating how new connections in the trialogue appeared and how we could all learn from the psychotic experience to handle the reactions to the pandemic. You can watch the recording of the first webinar here and read a summary of it in the autumn 2020 ISPS newsletter also.
Webinar 1
COVID19 and Psychosis (June 2020)
In May 2020 ISPS put out a call to people with lived experience of psychosis, to their family members, and to professionals. The first call was to gather stories of experiences of Corona-time - your stories. You can read here these first, brief submissions. As the pandemic progressed, in June we asked for longer stories, which you can read below. These stories served as the starting point for an international Webinar on COVID-19 and Psychosis on 25th June 2020.
You can watch the recording of the webinar on the ISPS YouTube channel here.
Looking further ahead, the stories could provide questions for future qualitative research.
First submissions received (brief stories)
My story (anonymous)
Story of a partner (anonymous)
Why I am a Pirate - Eddo Rats
How the Wall of Status collapsed - Jose Hoekstra
In June, three broad questions were asked to enable you to tell your story:
- What have your experiences been since the beginning of the pandemic and did your experiences change over time?
- What changes did you notice in the relationships between people with psychosis susceptibility, family members and other loved ones, and practitioners? What was the effect of less contact with the environment and distancing? What was the effect of other ways of contact that came into use, such as video and phone calls, greetings across the street, etc.?
- What changes would you like to take forward into the future?
NB If a qualitative research project is initiated from this material, we will contact you in order to get your acceptance to use it in the research.
