COVID-19 and Psychosis

The corona crisis has brought significant changes to our interactions with each other. While the crisis may be even more challenging for people living with psychosis, we have also heard stories of resilience - that some people with psychosis susceptibility are doing well or even better than others in this period.

Why are we so interested in your experiences during the pandemic?

One of the objectives of ISPS is to investigate the relationship between psychosis and the environment. Now that there are profound changes in the relationship between people, this is a unique opportunity to learn from experience, including learning about the strengths of psychosis susceptible people.

We want to hear from people with psychosis susceptibility as well as their family members and practitioners. 

Webinar 2

Covid and Psychosis : living in the long run

Tuesday 24th November 20:00-22:00 CET

Register here

This event is free for ISPS members. Non-members are also welcome to attend if they give a donation of minimum 5 Euros to ISPS (or become a member of ISPS before registering for the webinar).

 

Following the first successful ISPS International webinar on COVID-19 and Psychosis in June, the ISPS EC are preparing a second webinar on the theme COVID-19 and Psychosis: Living in the long run.

 

There will once again be a Trialogue between a person with lived experience of psychosis, a family member and a professional, followed by a summary of the stories submitted and discussion with participants.

 

Panelists: Paul Ekwuruke, Irene van der Giessen and Pat Wright

 

Discussion moderators: Debra Lampshire and Rai Waddingham

 

We are now in the middle of a longer term life with the COVID pandemic and all the social and individual reactions that are emerging. During our first webinar in June 2020, we tried to focus on the way persons with susceptibility to psychosis, family members and health carers dealt with this new situation and see the negative and the positive aspects. We were also very interested in stories relating how new connections in the trialogue appeared and how we could all learn from the psychotic experience to handle the reactions to the pandemic. You can watch the recording of the first webinar here and read a summary of it in the autumn 2020 ISPS newsletter also.

For this webinar we wish to gather the following part of the stories you are living - as persons with lived experience, family members and health carers. ISPS provides a unique opportunity to bring together this trialogue and thus understand more of the consequences of the pandemic for the future of our thinking and caring.

Questions for your stories:

1.     As a person with lived experience of psychosis, family member, friend or health carer, what do you think will be the long term consequences of the pandemic and can you reflect on how you think you and society will evolve to the experience? For instance, in mental health services?

2.       What negative divisions in our community have you witnessed? Has the ongoing pandemic given rise to community changes? For instance, more frustration, anger, racism , isolation or conspiracy theories and less social interaction and physical contact

3.       Do you see a positive aspect in this experience? For instance, a new solidarity, creativity, connections, openness for relations, feelings of togetherness and/or sharing of existential questions that may actually enrich our thinking for the future of our global community?

Please send your stories to isps@isps.org by 19th November. 

Your story can be up to 2 pages long. All stories will be presented on our website and summarised during the webinar (provided that you give us permission for this). Along with your story you may submit your name, country of residence and something about your background - if you wish - or you may remain anonymous.

 

Webinar 1

COVID19 and Psychosis (June 2020)

In May 2020 ISPS put out a call to people with lived experience of psychosis, to their family members, and to professionals. The first call was to gather stories of experiences of Corona-time - your stories. You can read here these first, brief submissions. As the pandemic progressed, in June we asked for longer stories, which you can read below. These stories served as the starting point for an international Webinar on COVID-19 and Psychosis on 25th June 2020.

You can watch the recording of the webinar on the ISPS YouTube channel here.

Looking further ahead, the stories could provide questions for future qualitative research.

First submissions received (brief stories)

My story (anonymous)

Story of a partner (anonymous)

Andrew Locke's story

Arpita Gupta's story

Georgia Case's story

The Mayor of Crazytown

Tim Ness' story

Ishita Sanyal's story

Rochio Calbacho's story

Eva's story

Diana Prada's story

Why I am a Pirate - Eddo Rats

How the Wall of Status collapsed - Jose Hoekstra

Jeanny Severijns' story

Said's story

Psychosis and Corona

 

In June, three broad questions were asked to enable you to tell your story:

  1. What have your experiences been since the beginning of the pandemic and did your experiences change over time?
  2. What changes did you notice in the relationships between people with psychosis susceptibility, family members and other loved ones, and practitioners? What was the effect of less contact with the environment and distancing? What was the effect of other ways of contact that came into use, such as video and phone calls, greetings across the street, etc.?
  3. What changes would you like to take forward into the future?

NB If a qualitative research project is initiated from this material, we will contact you in order to get your acceptance to use it in the research.

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The ISPS Journal Psychosis accepts personal and institutional subscriptions. All Individual Members of ISPS and members of regional ISPS groups receive quarterly issues of the journal as a membership benefit.